Listening to patients so far and working with our providers, we are now thinking about how we meet the challenges identified in the Independent Review and the feedback we have gathered from the public, palliative care clinicians and staff to date. We have identified the following as challenges that we seek to find solutions for going forward:
• inequity of access to the services, with only 48% of people who have an expected death having any contact with community palliative care services; and
• inequity of funding arrangements for the services from the CCGs
• inequity of specialist palliative care services in the three boroughs
At the beginning of February 2020 we will be publishing some potential solutions which seek to address the current challenges services face in terms of access, service provision and workforce shortages for further discussion and engagement.
We will engage with the public and key stakeholders on these potential solutions to gather people’s views as we continue to develop plans for the future model of care.
Should we take the view that a significant change from the current service provided is required, then we would move to a public consultation which would ensure further engagement opportunities for local people to be involved in developing the future model of care.
Public engagement – What we have done so far
Since December 2018 we have engaged; local patients, families, carers, residents, the voluntary and community sector, patient representative groups across the four boroughs. We launched a ‘Call for evidence’ to hear from local people and professionals their views on services and how they are working. This information was used in the Independent Review which was led by Penny Hansford, who previously worked as Director of Nursing at St. Christopher’s Hospice in South London.
Between September – October 2019 we ran a series of engagement events to involve patients, local people and health and care professionals to look at people’s experience of palliative care services focussing on access, care and the transfer of care and bereavement. We have published a summary of findings from the workshops which can be found here.
Please see our Frequently Asked Questions (FAQ) documents for Palliative Care and the Pembridge Palliative Care Centre. If you have any further questions please email firstname.lastname@example.org